The Gift of Experience: Conversations About Hemophilia Review

The Gift of Experience: Conversations About Hemophilia
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The Gift of Experience: Conversations About Hemophilia ReviewThis oral history is moving and honest, letting men with hemophilia describe what it is like to live with their disorder. The men interviewed come from the first generation to be able to receive treatment for their bleeding, by infusing the missing protein into their blood. An infusion of clotting protein could stop the bleeding, the swelling and pain of a bleed, and offered a chance at a life outside of a bed, ice packs and pain. As men with hemophilia rejoiced, they were paying a silent, unexpected price: the clotting protein was drawn from donated blood, and often infected with HIV/AIDS, and hepatitis C.
This is history from those who are living it, told in their own words. It is an extraordinary "Gift," indeed.The Gift of Experience: Conversations About Hemophilia Overview

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